We've just added compiled daily living strategies for parents and caregivers of individuals with #FASD. Now available on our website under Resources.
Each strategy document is downloadable and printable.
The information is a compilation of everyday strategies and approaches used by parents and caregivers and parents of individuals with FASD. Each individual impacted by FASD has unique strengths and challenges. Therefore, not all strategies suggested will necessarily work for your situation. We recommend finding the best approach and routine that works for you and stick with it!
fasdNL is hosting an upcoming event in St. John's for parents and caregivers of individuals with suspected or diagnosed FASD. If you are interested and would like more information, please email email@example.com.
CanFASD offers a free online training course Foundations in FASD. This basic training is a great introduction to FASD and takes approximately two hours to complete. It is available here.
Due to last weekend's weather, two of our FASD day events were rescheduled to this coming weekend!
Please share widely with your networks for the events happening in Marystown on Friday, September 13th and in St. John's on Sunday, September 15th (more details in posters below).
Registration is available online https://www.events.runningroom.com/site/?raceId=16474 or ahead of the race in Bowring Park on Sunday afternoon.
2019 FASD Day events across Newfoundland and Labrador (see event posters below)
Friday September 6, Church Road Park, Grand Falls-Windsor
Sunday September 8, Bowring Park, St. John's
Monday September 9, Blanche Brook Park, Stephenville
Registration is now open for the 4th annual Heart & Sole 3k/5k walk & family fun run in Bowring Park on Sunday September 8th. Join fasdNL and our community partners as we recognize FASD day. BBQ, face painting and great prize draws to follow!
Register online here: https://www.events.runningroom.com/site/?raceId=16474
Stay tuned for information about our other regional events happening across the province for FASD Day!
A big thank you to the Newfoundland & Labrador Liquor Corporation @nlliquor for their generous donation to fasdNL. Our board member Karen Pennell of @StellasCircle recently accepted the cheque from Sharon Sparkes & Sean Ryan. Thank you for continuing to fund fasdNL's initiatives!
"The few people who can get access to an assessment in the province and get a diagnosis then struggle to access supports such as respite care, intervention and services."
Story available via The Telegram here
FOR IMMEDIATE RELEASE
In September 2017, we released a landscape paper of FASD work to date in Newfoundland and Labrador and made three recommendations in the paper. We are proud to report that a variation of our landscape paper has been published in the October 2018 issue of Birth Defects Research (available here authored by fasdNL’s part-time staff member, Katharine Dunbar Winsor, and former board member, Dr. Melody Morton-Ninomiya).
We renew our call to seek the commitment of the Department of Health and Community Services to work with us toward those three recommendations.We would like to thank the Department of Health and Community Services for funding received in spring 2018. Based on evidence in two recent studies, the current estimate for the prevalence of FASD in the general Canadian population is 4%. However, FASD continues to be an under-resourced and under-funded issue in our province. Many of the individuals with FASD in NL, as well as their parents and caregivers, live with limited to no support or resources and face additional stigma attached to misinformation or stereotypes about FASD.
The fasdNL Network’s mandate includes addressing FASD awareness, prevention, intervention and support initiatives across the province while forwarding the conversation about diagnostic capacity within all regional health authorities. fasdNL directly offers FASD training to professionals, parents, and caregivers from all regions – to over 600 participants throughout the province in 2016-18. We also offer virtual support networks, private electronic chat groups and direct support to parents and caregivers. Please see our 2017-18 Annual Report enclosed.
In order to give voice to parents and caregivers, we asked them to share their experiences with us - to tell us about how they seek support and about their continued struggles and needs. And in an effort to take stock of our training and gaps, we collected feedback from FASD 101 participants. Please see the enclosed report titled Shining a Light on FASD in NL.
Since its formation in 2013, fasdNL has operated on limited project-based funding, supplemented by fundraising efforts and donations. However, these funding strategies are not able to sustain the delivery of prevention, intervention, support or training work in the province. At this point, fasdNL is at risk of losing our only part-time staff person who coordinates the majority of our initiatives.
The fasdNL Network is seeking support from provincial government to continue this important work. We are requesting a three-year funding commitment from the Department of Health and Community Services. Such funding will allow fasdNL the ability to maintain a part-time staff person and seek additional project-based funding to grow our initiatives.
We are encouraged by the significant progress to date on the Towards Recovery Mental Health & Addictions Action Plan.
We have requested the opportunity to meet and discuss in further detail with members of provincial government.
For more information or media enquiries: firstname.lastname@example.org
The fasdNL Network is a pan-provincial organization that educates, networks and shares resources to improve the lives of individuals, families, and communities affected by FASD. Individuals with FASD are at increased risk to experience challenges with mental health, housing, poverty, education, employment and criminal justice involvement throughout their lifetime.
Keep up to date with news, training and events by fasdNL.