FOR IMMEDIATE RELEASE
In September 2017, we released a landscape paper of FASD work to date in Newfoundland and Labrador and made three recommendations in the paper. We are proud to report that a variation of our landscape paper has been published in the October 2018 issue of Birth Defects Research (available here authored by fasdNL’s part-time staff member, Katharine Dunbar Winsor, and former board member, Dr. Melody Morton-Ninomiya).
We renew our call to seek the commitment of the Department of Health and Community Services to work with us toward those three recommendations.We would like to thank the Department of Health and Community Services for funding received in spring 2018. Based on evidence in two recent studies, the current estimate for the prevalence of FASD in the general Canadian population is 4%. However, FASD continues to be an under-resourced and under-funded issue in our province. Many of the individuals with FASD in NL, as well as their parents and caregivers, live with limited to no support or resources and face additional stigma attached to misinformation or stereotypes about FASD.
The fasdNL Network’s mandate includes addressing FASD awareness, prevention, intervention and support initiatives across the province while forwarding the conversation about diagnostic capacity within all regional health authorities. fasdNL directly offers FASD training to professionals, parents, and caregivers from all regions – to over 600 participants throughout the province in 2016-18. We also offer virtual support networks, private electronic chat groups and direct support to parents and caregivers. Please see our 2017-18 Annual Report enclosed.
In order to give voice to parents and caregivers, we asked them to share their experiences with us - to tell us about how they seek support and about their continued struggles and needs. And in an effort to take stock of our training and gaps, we collected feedback from FASD 101 participants. Please see the enclosed report titled Shining a Light on FASD in NL.
Since its formation in 2013, fasdNL has operated on limited project-based funding, supplemented by fundraising efforts and donations. However, these funding strategies are not able to sustain the delivery of prevention, intervention, support or training work in the province. At this point, fasdNL is at risk of losing our only part-time staff person who coordinates the majority of our initiatives.
The fasdNL Network is seeking support from provincial government to continue this important work. We are requesting a three-year funding commitment from the Department of Health and Community Services. Such funding will allow fasdNL the ability to maintain a part-time staff person and seek additional project-based funding to grow our initiatives.
We are encouraged by the significant progress to date on the Towards Recovery Mental Health & Addictions Action Plan.
We have requested the opportunity to meet and discuss in further detail with members of provincial government.
For more information or media enquiries: email@example.com
The fasdNL Network is a pan-provincial organization that educates, networks and shares resources to improve the lives of individuals, families, and communities affected by FASD. Individuals with FASD are at increased risk to experience challenges with mental health, housing, poverty, education, employment and criminal justice involvement throughout their lifetime.
Are you a parent/caregiver of an individual with FASD or have a diagnosis of #FASD and live in Newfoundland and Labrador?
We are looking to hear about your experiences through a brief anonymous and confidential survey available here https://www.surveymonkey.com/r/BKHWRNK
To increase awareness of FASD day and raise funds for fasdNL - Please find information below for our regional FASD day events!
Registration for the 3rd annual Heart & Sole Walk & Family Fun Run in Bowring Park for International FASD Day is now open. Join the fun by registering here.
More information, sneak peaks of prizes to be won and invite your friends and family by visiting our Event on Facebook here.
Are you interested in becoming an #FASD 101 trainer? Do you live or work in the Western region? fasdNL is offering FASD 101 Train the Trainer in Corner Brook on May 31st. Email firstname.lastname@example.org for additional details!
Key Assets is looking for families across Newfoundland and Labrador to provide therapeutic care to children and youth in our family-based care program.
Carers will provide a child with complex needs the opportunity to live in a supportive and nurturing family environment. A generous care allowance is provided, along with ongoing training and extensive supports.
For more information visit:
https://keyassetsnl.ca/contact-us/carer-recruitment/ or email email@example.com
fasdNL gratefully acknowledges the Department of Health and Community Services for their recent funding of #FASD initiatives in Newfoundland and Labrador.
fasdNL has lauched a Caregiver & Parent Support Chat Group - a private space for caregivers to discuss and share ideas and resources. Are you a caregiver of an individual with #FASD and you live in Newfoundland and Labrador? Self-refer by emailing firstname.lastname@example.org
Are you interested in receiving fasdNL's newsletter? You can sign up here: http://www.fasdnl.ca/newsletter.html
September 7, 2017
fasdNL has released a landscape paper of FASD in Newfoundland and Labrador. The paper is available above. For additional information or media enquires, please email email@example.com
August 17, 2017
In recognition of international FASD day, fasdNL in collaboration with our various FASD regional committees are hosting events in St. John's, Grand Falls-Windsor, Stephenville and Happy Valley-Goose Bay! More details are available on our events page.
August 1, 2017
Get social with fasdNL & follow us on Facebook & Twitter!
August 1, 2017
fasdNL's initiatives are partially funded by the Community Healthy Living Fund. The funding provided through the Department of Children, Seniors & Social Development has helped to support the continued delivery of #FASD 101 training across Newfoundland & Labrador and the continuation of the Virtual Support Group for parents and caregivers. We gratefully acknowledge the provision of this funding to support the important work of fasdNL.
July 13, 2017
Registration is open for our 2nd annual Heart & Sole 3k Walk & Family Fun Run in Bowring Park, St. John's on FASD Day, Saturday September 9th!
Register for this fun, family friendly event here
Stay tuned for more FASD Day events happening across the province!
July 7, 2017
Check out our Events page for information about a recent talk given to Grade 7 students in Happy Valley-Goose Bay about healthy pregnancies.
May 30, 2017
Do you live in the Western region of Newfoundland? Are you interested in joining a Western regional FASD Committee?
Email firstname.lastname@example.org for more information and meeting times.
February 22, 2017
Looking for printable FASD resource materials?
Check out these links: Strategies Not Solutions
Teaching Students with FASD
Re: defining success A team approach to supporting students with FASD
February 1, 2017
FASD 101 Introductory Training offered in collaboration with the Newfoundland Housing and Homelessness Network (NLHHN) February 22nd in St. John's.
Video link for training open for individuals across the province available here
January 10, 2017
Upcoming webinar hosted by the Public Health Agency of Canada on Wednesday, January 18th, 2017 from 1:00–2:30 p.m. EST. Please note that simultaneous interpretation will be provided.
Please join us in learning about how Fetal Alcohol Spectrum Disorder (#FASD) is a mobilizer in educational change. Sean Monteith, the Director of the Keewatin-Patricia District School Board (KPDSB) will speak to how and why KPDSB tailored their program and curriculum to meet the needs of children and youth living and learning with FASD.
To register please click here
November 8, 2016
fasdNL's Virtual Support Group meets Wednesday November 23rd. This support group is open to all parents and caregivers of individuals with FASD across Newfoundland & Labrador. For more information email email@example.com
*Support group is free and accessible to all by phone - callers can choose to remain anonymous if they prefer.
September 29, 2016
fasdNL held our Annual General Meeting on September 20th. See our updated board of directors under the FASDNL tab.
August 31, 2016
fasdNL, the St. John's FASD Regional Committee and the Running Room are excited to announce our first annual Heart & Sole 3k Walk & Family Fun Run in Bowring Park on Saturday September 10th at 10:30. See the Events page for more information or click here
To register for the walk, click here
August 26, 2016
Check out our Events page for information about an FASD Day event in Happy Valley Goose-Bay!
August 16, 2016
Check out our Events page for information about FASD Day events in Grand Falls-Windsor, Newfoundland!
August 15, 2016
September 9th is international FASD Day an opportunity for communities to come together to support prevention and intervention of FASD. Please join us and our local partners on the steps of City Hall in St. John's for our annual Bell Concordance at 9:09AM Friday September 9th.
For more information, email firstname.lastname@example.org
July 8, 2016
Upcoming FASD 101 Training in Nain throughout the week of July 11-15. These sessions are open to the public. If you would like more information email Tracy.Saunders@nunatsiavut.com
May 26, 2016
Upcoming FASD 101 Training in St. Anthony on June 6th. This training is open to the public. Limited seats available, please RSVP.
May 6, 2016
The Virtual Support Group for parents and caregivers of individuals with FASD meets next Wednesday May 11th at 7pm. Open to people across the province. Email email@example.com for more information!
May 5, 2016
FASD 101 training is being offered to a variety of professionals Wednesday June 1st in St. John's. If you or your organization is interested, please email firstname.lastname@example.org Limited seats remaining!
April 6, 2016
Check out the Training tab for upcoming FASD training throughout Newfoundland & Labrador!
April 6, 2016
The Virtual Support Group for parents & caregivers of individuals with FASD meets next Wednesday April 13th @ 7pm. Meetings are accessible by phone or computer and are open to people across Newfoundland & Labrador. For more information email email@example.com
April 5, 2016
Strongest Families is still recruiting families into their FASD study, but will be closing the Strongest Families FASD study in July 2016 to analyze the data that’s been collected, so please contact your families soon.The Strongest Families FASD study is testing an online coached parenting program with families of children age 4-12 with an FASD diagnosis from across Canada. There is NO COST to parents. Families can go directly to the website (http://mystudies.ca/studies/fasd) to see if they are eligible to participate in the study.
February 25, 2016
The first meeting of the Virtual Support Group for Parents & Caregivers of individuals with FASD will be held on Wednesday, March 16th. For more information click here or email firstname.lastname@example.org
February 10, 2016
The second webinar on Trauma informed practice will be taking place February 29. This webinar features Dr. Nancy Poole, Holly Murphy & panelists from across Atlantic Canada. Click here for more information.
January 24, 2016
Ongoing Recruitment for Strongest Families FASD Study
For more information visit: https://mystudies.ca/studies/fasd
December 13, 2015
Check out our sign up form under 'Contact' to receive Newsletters from fasdNL
December 7, 2015
Interested in a virtual support group for parents & caregivers of individuals with FASD? Support meetings can be accessed from anywhere across the island by phone or video call. For more information email email@example.com or see the Resources page!
October 29, 2015
Recent FASD training took place in Sheshatshiu, more information is available under Training.
October 25, 2015
Paediatricians advise no alcohol during pregnancy.
Keep up to date with news, training and events by fasdNL.