Screening for FASD
A national screening tool kit for children and youth identified and potentially affected by FASD has been developed by CAPHC and has been released for wide distribution. The authors of the tool kit have indicated:
It is extremely important that screening is never used as a substitute for full assessment and diagnosis. Screening tools are not perfect and can only predict the likelihood that a child or youth is at-risk for FASD. Misuse of screening tools has the potential to stigmatize individuals and families and runs contrary to the ethical dictate to ‘do no harm’.
Similarly, screening should not be done where there is no access to diagnostic services or in areas where capacity for diagnosis is so limited that an individual must wait a long time to be seen. In these situations screening is likely to be become a ‘de facto’ diagnosis and not serve the needs of the child or youth.”
(Taken from FASD Screening Toolkit)
A national screening tool kit for children and youth identified and potentially affected by FASD has been developed by CAPHC and has been released for wide distribution. The authors of the tool kit have indicated:
It is extremely important that screening is never used as a substitute for full assessment and diagnosis. Screening tools are not perfect and can only predict the likelihood that a child or youth is at-risk for FASD. Misuse of screening tools has the potential to stigmatize individuals and families and runs contrary to the ethical dictate to ‘do no harm’.
Similarly, screening should not be done where there is no access to diagnostic services or in areas where capacity for diagnosis is so limited that an individual must wait a long time to be seen. In these situations screening is likely to be become a ‘de facto’ diagnosis and not serve the needs of the child or youth.”
(Taken from FASD Screening Toolkit)
Getting a Diagnosis
An early diagnosis is one of the keys to success. Understanding FASD, using effective strategies and accessing interventions can lead to the best possible outcomes for an individual with FASD.
Getting a diagnosis can be a challenge depending on where you live (in other words, who can make a referral or a diagnosis in your area), how affected you are, your age and the ability to be in contact with your biological mother (for confirmation that alcohol was consumed while the mother was pregnant.
Reasons for getting a diagnosis : There are many reasons why people may pursue a diagnosis.
● It may shed light on certain behaviours or challenges being experienced… and similarly,
suggest better and more effective strategies.
● Strategies for ADD/ADHD (misdiagnosis) are not proving effective.
● It may provide access to helpful resources.
● Appropriate early interventions can improve outcomes and supportive environments.
In Newfoundland & Labrador
Currently in Newfoundland and Labrador, there is no province-wide comprehensive assessment and diagnostic team or service for anyone suspected of having FASD. Dr. Rosales (St. John’s) is a retired paediatric geneticist who until December 2015, in the absence of any FASD diagnostic team in Newfoundland and Labrador, continued to diagnose and follow individuals with FASD who were referred by their paediatrician or other medical doctor.
Janeway Provincial Genetics Program
Waitlist can be a multi-year wait process.
Labrador Grenfell Health Region
There is an FASD diagnostic team in the Labrador Grenfell Health Region (in Happy Valley-Goose Bay and St. Anthony) Eligibility for assessment: 8-18 years old.
Residents born or currently living in the Labrador Grenfell region.
Referrals can come from guardians, physicians, educators, social workers.
Waitlist varies depending on age.
For more information:
Tel: (709) 897-2346
julia.obrien@lghealth.ca
https://www.lghealth.ca/your-health/programs-and-services/mha/fetal-alcohol-spectrum-disorder-fasd/
Central, Western, Eastern Health Regions
Referrals can be made to Dr. Tanya Lentz in the Pediatric NeuroPsychology Unit at the Janeway Children's Hospital.
Offering assessments for individuals 3-18 years old.
Tel: (709) 777-4804
Waitlists vary.
Private Practice Options
NeuroSpark Psychology
Dr. Tanya Lentz, R. Psych.
Private assessments subject to fees and/or billable through private health insurance.
Assessments available for individuals across the lifespan.
https://neurosparkpsychology.com/about
Health Education Services Inc.
Heather Paul, R. Psych.
Private assessments subject to fees and/or billable through private health insurance.
Assessments available for individuals across the lifespan.
P.O Box 1519
Bay Roberts, NL A0A 1G0
healtheducationservices@bellaliant.com
Telephone: (709) 786 1722
Fax: (709) 786 1705
An early diagnosis is one of the keys to success. Understanding FASD, using effective strategies and accessing interventions can lead to the best possible outcomes for an individual with FASD.
Getting a diagnosis can be a challenge depending on where you live (in other words, who can make a referral or a diagnosis in your area), how affected you are, your age and the ability to be in contact with your biological mother (for confirmation that alcohol was consumed while the mother was pregnant.
Reasons for getting a diagnosis : There are many reasons why people may pursue a diagnosis.
● It may shed light on certain behaviours or challenges being experienced… and similarly,
suggest better and more effective strategies.
● Strategies for ADD/ADHD (misdiagnosis) are not proving effective.
● It may provide access to helpful resources.
● Appropriate early interventions can improve outcomes and supportive environments.
In Newfoundland & Labrador
Currently in Newfoundland and Labrador, there is no province-wide comprehensive assessment and diagnostic team or service for anyone suspected of having FASD. Dr. Rosales (St. John’s) is a retired paediatric geneticist who until December 2015, in the absence of any FASD diagnostic team in Newfoundland and Labrador, continued to diagnose and follow individuals with FASD who were referred by their paediatrician or other medical doctor.
Janeway Provincial Genetics Program
Waitlist can be a multi-year wait process.
Labrador Grenfell Health Region
There is an FASD diagnostic team in the Labrador Grenfell Health Region (in Happy Valley-Goose Bay and St. Anthony) Eligibility for assessment: 8-18 years old.
Residents born or currently living in the Labrador Grenfell region.
Referrals can come from guardians, physicians, educators, social workers.
Waitlist varies depending on age.
For more information:
Tel: (709) 897-2346
julia.obrien@lghealth.ca
https://www.lghealth.ca/your-health/programs-and-services/mha/fetal-alcohol-spectrum-disorder-fasd/
Central, Western, Eastern Health Regions
Referrals can be made to Dr. Tanya Lentz in the Pediatric NeuroPsychology Unit at the Janeway Children's Hospital.
Offering assessments for individuals 3-18 years old.
Tel: (709) 777-4804
Waitlists vary.
Private Practice Options
NeuroSpark Psychology
Dr. Tanya Lentz, R. Psych.
Private assessments subject to fees and/or billable through private health insurance.
Assessments available for individuals across the lifespan.
https://neurosparkpsychology.com/about
Health Education Services Inc.
Heather Paul, R. Psych.
Private assessments subject to fees and/or billable through private health insurance.
Assessments available for individuals across the lifespan.
P.O Box 1519
Bay Roberts, NL A0A 1G0
healtheducationservices@bellaliant.com
Telephone: (709) 786 1722
Fax: (709) 786 1705
Diagnostic Teams
The most effective diagnostic teams work together across disciplines. Most teams consist of a physician, psychologist, occupational therapist, speech and language pathologist and a social worker.
(Canadian FASD Diagnostic Guidelines)